Awareness

At the age of 25 after my second child was born Endometriosis came up and I was put on the pill as “the cure” I put a lot of weight on. I never thought to look into anything or question the doctor or advocate for myself. I...
I remember the eve of the 6th grade balling my eyes out because that little red coming of age friend appeared in my underwear for the first time. Most girls my age thought getting their period was a rite of passage and an honor. Not me. I...
Hi I'm Jess and I was diagnosed this time last year. I had been experiencing bad periods from the age of 15 and was put onto the pill at 16 to regulate my periods. I took the pill for 6 years until I had...
Having endometriosis is hard enough without having to deal with the constant judgment of pretty much everyone in your life. The pain is life-changing. It doesn’t go away like we need for it to, when we need it to so we do the one thing we think...
Endometriosis occurs when the tissue inside the uterus grows in other areas of the abdomen. Most often, the fallopian tubes and ovaries are affected. Although endometriosis is most prevalent in women between the ages of 30 to 40, it can affect women of all ages, sometimes as...
When any woman finds out she's pregnant, she will naturally have many questions. However, for the mother-to-be with endometriosis, a condition where the tissue that lines the inside of the uterus adheres to the outside of the uterine cavity, there are even more questions and concerns to...
Endometriosis Symptoms can include: Irregular or heavy menstruationNauseaPain with urinationPain with intercourseChest painExcessive bleedingFatigueHeadacheLower abdominal painInfertilityPain with bowel movementsConstipationBloody urineBloatingCramping during intercourseChronic fatigueDiarrheaPelvic painPainful periods (Dysmenorrhea)Low back pain Read our other article on Endometriosis: My Weakness Helps Prove My Strength, CLICK HERE
Did you know that some people who think they have an Endometriosis diagnosis actually might have Adenomyosis. The difference is subtle. Adenomyosis is related to Endometriosis but there are distinct differences between the two diseases. For a diagnosis of Endometriosis, the endometrial tissue has...
Use the hashtag #ThisIsEndometriosis in your postings that you talk about Endometriosis this month to help spread the word! All of our journey's are different with Endometriosis but it's important that we stand united in spreading awareness for Endometriosis. It's an invisible illness and...
If there was one thing you could say to help people understand Endometriosis, what would it be? How would you describe it? Share to Raise Awareness! Hello, I’m Twymosha, and I’ve been a victim of endometriosis since I was 16 years old. I’m now 27. At the age of 26,...
Have you ever missed your period because of Ovarian cysts? Share your experience and tips in the comments! Ovarian cysts are one of the worst pains I have ever felt. I learned that I had a cyst when I had to get my appendix removed through surgery. I had to...
What’s the most frustrating part of your Condition? Share to Show your Support! Cysts are one of the worst things that any female can get. I didn’t know I had cysts until the doctors found them before I had surgery. I had a lot of symptoms before I found out...
Did you have any unusual symptoms before you got your diagnosis? Share to Show your Support! As a teenager, I’ve always had heavy and painful periods. I never thought of endometriosis because my best friend had endo and our symptoms were different. I was officially diagnosed with endometriosis in March 2008...
How did your condition begin and progressed to where it is today? Show your Support by Commenting! I started having horrible periods when I was 13. I didn’t know that it wasn’t normal, I supposed every girl feels like this when having periods. I would have to be sent home...
Do you struggle with Endometriosis? Share your story to Raise Awareness! My name is Lindsey Peters and I have been suffering from Endometriosis since 2016. Only those who are closest to me knew. I decided to talk publicly about it, to give a face and a voice to an under-researched,...

Endo Life for Me

What was the biggest challenge after being diagnosed? Share to Raise Awareness! When I was 14 years old I got my first period, which was heavy. I had cramps and I was told that it was normal. So, I just sucked it up and lived with this is what it...

An Isolated Life

Being an aerospace engineer, it is the toughest struggle every day to live a life homebound. I cannot go for a regular job because of a sudden flare-up of endometriosis. Unfortunately, I am having now diabetes type 2, bones weakness, lymph node TB (just recovered), skin rashes, asthma in...
How do you cope with Endo? Share this Story to Raise Awareness! Well, I’ll start this off by saying today 8/14/18 is Day 40 of me starting a new drug. I’m in a research study of this drug that just recently got approved in the US 2 weeks ago. Let’s start...
What’s your biggest problem because of Endo? Share this story to Raise Awareness! Having fertility issues is a demon all on its own, you hide behind your smiles when people constantly ask you about your future plans with your spouse when you’re going to have a baby if baby plans...
What was your first Reaction when you got your Diagnosis? Show your Support by Commenting! My motherhood journey started in 2013 when our first little boy was born – the most magical time of our lives. When we spoke about having children, we thought it would be so simple and...
How were you diagnosed with Endometriosis? Share your story in the Comments! My name is Becky. I am 26 years old. I was recently diagnosed with Endometriosis. I am sharing my story in the hope that I can help raise more awareness on this awful condition and help other people...
How did your condition begin and progressed to where it is today? Share this blog to raise awareness! It is so weird to think that I am sitting here reflecting upon the journey of recovery after surgery. After reading how long it takes to get to the point of surgery, I...
If there was one thing you could say to help people understand Endometriosis, what would it be? Share it in the Comments Below! My name is Tiffany and I would like to share my story. I am 28 years old and I have struggled with endometriosis for 13 years since...
Have you ever heard about Lynch Syndrome? Share your Support in the Comments! Over the winter, my periods had gotten out of control. The amount was way too much, and it was happening more than once a month. So I finally convinced myself to head to the Gynecologist. Not really...
What do you to overcome your loss and live happily? Share your Support by Commenting Below! I struggled to live in a new country after having been in Mexico due to leaving my family and friends behind. All my life, I was living with endometrial pain, but when I arrived in...
Do you suffer from Endometriosis? Share your thoughts to Raise Awareness! I was first diagnosed with Endometriosis about a year ago. I went to the Doctor because I had been dealing with INCREDIBLE pains that I couldn’t find the cause for. I left work to go to the hospital on multiple...
Would you consider Hysterectomy if it can help with your Endo? Tell us in the Comments and Share the Blog to Raise Awareness! Source: CureUp
How did Endometriosis affect your life? Tell us in the comments on the Blog and Share the Blog to Raise Awareness! Source: CureUp
Who is there for you to support you during difficult times? Show your support by Sharing the Blog! Back in February 2017, I had an abnormal result when I tested my ovaries. I have never gone back to get a follow up because I was spending time with my mother...
One in ten women worldwide is thought to have Endometriosis. Known for years as "the disease of the career woman", based on the idea that women without children have developed the disease in their reproductive organs, endometriosis is a painful disease designed to affect one in ten women worldwide. The condition...
Source: CureUp
Watch this video and leave a Comment to let us know who helped you the most in your Journey fighting Endometriosis! Tag them to show them you are Grateful! Source: CureUp
What are the First Symptoms you have noticed? Share it to Raise Awareness! Hi, my name is Tiffany and I am 35 years old. I am from California. Sunny living? I wouldn’t know because most days I’m riddled with side pain and migraines. I’m 5 years post full hysterectomy and...
Watch this video and leave a Comment to let us know who helped you the most in your Journey fighting Endometriosis! Tag them to show them you are Grateful! Source: CureUp
Watch this video and leave a Comment to let us know who helped you the most in your Journey fighting Endometriosis! Tag them to show them you are Grateful! Source: CureUp
How did your condition begin and progressed to where it is today? Share this blog to raise awareness! Source: CureUp
Are you suspecting you Suffer from Endometriosis? What are the Symptoms that you have? Share to Raise Awareness! Source: CureUp
Were you Surprised by the names that came up? Who else do you know that suffers from Endometriosis? Share it in the Comments Below! Source: CureUp
Pain during sex is a Common Symptom of Endometriosis. Share and Comment to show your Support!  I have been suffering from endometriosis since 2016. I found out after feeling chronic abdominal pain and pain during sex. All my sound results were normal and I received plenty of different types of...
Hormonal Contraception can help with Reducing Pain. Share and Comment to show your Support!  My story started when I was just eleven years old. My period began and I noticed I had EXTREME pain, unlike normal cramps other girls my age had, on my left side and some very awful...
  Which one is your Favorite? Tell us in the Comments! Source: CureUp
At 26, I had a hysterectomy. That was 10 years ago (I am now 36 years old). Here I am though, stronger than I was in the past, still battling this disease. Endometriosis has caused me issues ever since puberty, but back then I had no idea what it...
Women with Endometriosis are at a slightly higher risk of developing complications during early pregnancy. Take a read, Comment and Share the blog to Raise Awareness! Living a life with no health issues and finding out that I have a chronic disease seems like having two lives. I found out about...
Myth: There is no need to get a diagnosis, just to manage the pain with drugs. Take a read, Comment and Share the blog to Raise Awareness! My life is hell and it’s all because I suffer from endometriosis! It has completely taken over every part of my life, from my...
Pregnancy is not a cure for Endometriosis, but it may provide some relief. Take a read, Comment and Share the blog to Raise Awareness! Pregnancy is not a cure for Endometriosis, but it may provide some relief. Take a read, Comment and Share the blog to Raise Awareness! Source: CureUp
Even with a diagnosis, there is no unique approach to treating Endometriosis. Take a read, Comment and Share the blog to Raise Awareness! So many times I’ve wanted to film myself. To film myself, in the middle of a crisis, just to show people that this disease isn’t a joke. So many...
176 million women or 10% suffer from Endometriosis worldwide. Take a read, Comment and Share the blog to Raise Awareness! It all started when I was 13 years old and I got my first period. The pain I felt made me realize that something wasn’t right. After many months of having a menstrual cycle,...
Surgery is a solution for removing scar tissue and Endometriosis lesions, but the outcome greatly depends on the stage of the disease and the skills of a surgeon. Take a read, Comment and Share the blog to Raise Awareness! Growing up, I had always had cramps but I always just figured...
How do you handle your endo belly? Share to show your Support! It was a fresh and exciting Saturday, and like all Saturdays, I was hoping it would be an amazing day. All I wanted to do was hang out with my husband and our four cats, and just enjoy a lazy...
The complex symptoms cannot be managed by just any doctor. If you feel that your physician is not warm and understanding enough, try to find someone else. Take a read, Comment and Share the blog to Raise Awareness! The complex symptoms cannot be managed by just any doctor. If you feel...
Did you know and believe some of these Misconceptions? Show your support by Commenting! So you’ve been diagnosed with endometriosis, and you’re asking yourself where you stand now and what to expect going forward, so today I’m going to tell you some misconceptions about endometriosis you may have heard, some of...
Myth: Only women who pursue a career and delay childbearing get it. Take a read, Comment and Share the blog to Raise Awareness! I have never been a big fan of dating, especially nowadays. My mother would tell me how it was like in the 1960s and I would always romanticize...
200 million women around the world are affected by Endometriosis. Share and Comment to show your Support!  About 10 years ago, I started noticing the pronounced pelvic pain. It lasted not just when it was that time of the month, but all month long. I was getting sharp pelvic pain along...
Did your Diagnosis come as a surprise? Share to show your Support!  Our first family gathering to go over the details of my cancer and how “we” would fight as a family with treatment, support, love, and prayer. In December 2012, I took a bad, bad accidental fall, landing face planted on our...

My Invisible Illness

What's the most frustrating part of your Condition? Share to show your Support!  Hi, My name is Sabrina. I am currently 20 years old. I suffer from an illness called endometriosis. Endo what? Is what you’re probably asking yourself at the moment. If so, Endometriosis is when the lining of the uterus grows...
Did you know that every woman has a different experience with Endometriosis? Take a read, Comment and Share the blog to Raise Awareness! Life with endometriosis is so much more than just menstrual cramps, PMS or heavy period. It’s agonizing pain, anxiety, some days you can’t even get out of bed pain...

My Life Worth PCOS

What was the biggest challenge after being diagnosed? Show your support by Commenting! Last year I was diagnosed with PCOS (Polycystic ovary syndrome). I had no idea what I was going to do. It’s incurable. I had no idea what it was going to do with my life. Read more: My Life with Crohn’s...
What helps you with your Period Cramps? Show your support by Commenting! I am currently 21. I’ve always had severely bad periods, they lasted 7 days with heavy flows, severe cramps to where I didn’t want to get out of bed until my period was over. Read more: My Struggle with Endo My Dr. put...
Myth: It is just a little bit stronger Period Pain. Take a read, Comment and Share the blog to Raise Awareness! Growing up with endometriosis was a big struggle. I remember when I was in the 8th grade, I got these really bad cramps. Not the kind of cramps that like “ow”...
Women who suffer from Endometriosis have up to 6 times more chance to undergo multiple surgeries of reproductive organs. Share to Raise Awareness! My name is Kristen, I’m from Ontario, Canada and I am looking to provide a place where people can come for information, advice, support, and raise awareness...
Heavy and painful periods could be a sign of Endometriosis. Share to Raise Awareness! Ok so here’s my story (please bear with me this will be long, but it’s my story. Long, confusing and mine. I’m 5 days post hysterectomy. I am 29 years old, always had very painful, very heavy and...
What's the most frustrating part of your Condition? Share to show your Support!  My name is Charmen. I was diagnosed with endometriosis at age 34. I am 37 now. I had always had these pains, every since the age of twelve, but I believed it was a part of life. I was...
I don’t know where to begin really, I was only diagnosed with endometriosis last year, but it’s been something I’ve suffered since I was young. I developed early and started my period at the age of 10 and have had problems ever since, I was always fobbed off by...
When were you Diagnosed? What was your first reaction? Show your support to the Author by Commenting! I’ve been living with endometriosis for 10 years, diagnosed over 7. Things got really hard for me after I found I had this disease. I had just had my son when the pain initially started....
What's the most frustrating part of your Condition? Share to show your Support!  At the early age of 12 I was just doing my normal everyday thing of wasting time doing cartwheels, summer salts I noticed a deep cramp. I thought that I needed to slow down, next thing that I can...
What helps you move forward on difficult days? Share to show your Support! I was told I had endometriosis when I was 17. I had it for 4 years before a doctor actually believe me that I was in so much pain. But before I knew I went to an OB-GYN that...
How did your condition begin and progressed to where it is today? Show your support by Commenting! I was diagnosed with Stage 5 Endometriosis on November 1st, 2016. I had been through many trials of pain, different birth controls and examinations before my surgery. My Endometriosis was in my liver, kidneys,...
What are the Questions that have gone through your mind when you heard the Diagnosis? Show your support by Sharing and Commenting! Sadness. Anger. Confusion. Fear. So many feelings and emotions all at once. To hear the words, “you have endometriosis,” it really struck me. I had suspected it heavily for quite a...
Myth: You must be cured if you've gone through a hysterectomy. Take a read, Comment and Share the blog to Raise Awareness! My journey with Endometriosis started about 8 years ago. I would have heavy periods and be in unbearable pain, but I didn’t understand why. As time went on I really...
Have you ever had an unpleasant experience during an Exam? Share your experience in the Comments! I was suffering from intense pain in the abdomen area. Went to my doctor who was an elderly gentleman. He performed a pelvic exam. During the exam, I was in extreme pain and asked if it...
Hysterectomy is Not a Cure for Endometriosis. Share and Comment to show your Support!  Hello, My name is Jeannie and I have been suffering from endometriosis since I was 23. I have had multiple surgeries, medications, tried different diets and herbal foods. I have been fired from my previous job due to excessive...
How did your life change after getting Diagnosed? Show your support by Commenting! Pain. Tears. Exhaustion. All coiled tightly together in this eggshell we call our body. I wake up nauseous. Pain moving through me like rush hour traffic. Pills don’t help and most doctors think I’m a pain reliever junkie because of...
Very painful periods are one of the Symptoms of Endometriosis. Share and Comment to show your Support!  From the beginning, since my first period at age 11, I’ve always had painful periods. I was always told it was normal to have cramps and that it was just something every girl had...
What was your biggest Challenge with Endo? Show your support by Commenting! My journey starts when in 2007 I had an ectopic pregnancy where they had to remove my right tube. I was 14 weeks along. After that my whole world came crashing down around me. The pain and bleeding that started...
What helps you move forward on difficult days? Share to show your Support!  Endometriosis is much more than just a bad period. All too often, women with this disease are ridiculed by doctors and nurses misconstruing our pain and comparing it to cramps. When I was first diagnosed, my doctor told...
Did this Story Make You Feel Not Alone? Give Thanks to the Author by Commenting below! Two years ago I shared my Endometriosis Story. A lot has happened since then, so I thought that I would re-write it. Some parts will be word-for-word from my first post. I’m sharing my...
How Many Laparoscopies Have You Had? Comment Below! At 26, I had a hysterectomy. That was 10 years ago (I am now 36 years old). Here I am though, stronger than I was in the past, still battling this disease. Endometriosis has caused me issues ever since puberty, but back...
There is no known cause of Endometriosis and no unique cure. Take a read, Comment and Share the blog to Raise Awareness! My period started at a very young age. I was honestly in shock, as it started when I was in the 4th grade and only 10 years old. The cramps...
Who do you fight for? Who is the one person that gives you strength? Show your support by Sharing and Commenting! For as long as I can remember, I’ve had to endure really bad periods and pelvic pain, but was always told these issues I was experiencing were normal and nothing...
How to deal with unsupportive loved ones in regards to Endometriosis. 1.5 million women worldwide are affected by Endometriosis, almost as much as the ones affected by Diabetes. Take a read, Comment and Share the blog to Raise Awareness! Source: CureUp
Hormonal treatments can help, but cannot cure Endometriosis. Take a read, Comment and Share the blog to Raise Awareness! It started when I was only 12 years old. I began to experience severe uterus and stomach pain and at my age, I had no idea what that meant. My periods became...
Did you know that Endometriosis is one of  3 main causes of infertility? Share to raise awareness! Okay so you’ve been trying for a baby for awhile – maybe you’ve just found out you have endometriosis, maybe you’ve known for awhile or maybe you’re just suspecting, I know first hand...
I саn rесаll when I was a tееnаgеr, I have always bееn in соnѕtаnt раіn. I ѕоmеtіmеѕ mіѕѕ school activities bесаuѕе I wаѕ in so much pain. At tіmеѕ mу реrіоdѕ will go аѕ fаr аѕ 15 dауѕ making me tо miss a lоt оf ѕсhооl асtіvіtіеѕ. Thіѕ соntіnuеѕ...
Have you ever felt like you are Alone in your Fight against Endo? Show your support by Commenting! I don’t normally do these posts, but lately, girls have been talking to me about very specific problems that I have gone through for many years now. I only hope this story can...
Endometriosis is often misdiagnosed and the delay in diagnosing it may be 6-10 years. Share this blog to raise awareness! All of my life I have been told that every pain, issue, infertility, worry & emotion I have had has been no big thing. They were either in my head,...
Pain in the abdomen is one of the symptoms of Endometriosis. Share to raise awareness! I was first diagnosed with Endometriosis in 2013 when I had severe pelvic pain that lasted for 30 minutes and I felt like I was going to die. My dad, who was the only one...
Did you know that one in every 8 to 10 women has Endometriosis? Share this blog to raise awareness! If someone were to ask me if I expected to find strength in my present circumstances I would say who are you kidding? But life has had its way of just showing...
Did you try any natural remedies to help you with the pain? Do they help? Show your support by Commenting! https://youtu.be/WGfSuLN0dAY I got diagnosed with Endometriosis in April 2016, when MRI has shown and endometrioma/chocolate ovarian cyst of 6 cm. The pain and all other terrible symptoms of endometriosis I have had...
What's the most frustrating part of your Condition? Show your support by Commenting! Hi, my name is Crystal and I would like to tell you all about my journey with endometriosis. My journey had begun about 6 years ago when I had ended my monthly menstrual cycle and about a week...
One of the main Symptoms of Endometriosis is painful period. Share to Raise Awareness! When I was 17 I was diagnosed with Endometriosis via laparoscopy. I had it removed and a d&c done. I had suffered since I was 11 with heavy periods, extreme abdominal pain, cysts on the ovaries and...
What part of your Condition is most difficult for people to understand? Show your support by Commenting! I guess I should start at the beginning, well I would if I knew where the beginning of my endometriosis story was – but to tell you the truth from the day I got...
People have thought you were being dramatic about your pain - $20 Owning several heating pads - $15 Not being able to sleep - $10 Had Endo Belly at least once - $25 Being told it’s just a painful period when it’s not - $30 Back pain -...
Hey Endo Warriors! We all know that Endometriosis can be tough to deal with some days! Because we are a community that needs to stick together, the editors of this blog are creating an E-Book all about Endometriosis. And the best part is that they are giving it away...
Endometriosis is very much an invisible disease. Not too much is shown visibly and for that reason people don’t really understand what someone with it is going through. Sometimes living with Endo can be easy but other times it can be excruciating painful. So painful you have to stay...
  Just because I have Endometriosis does not mean that changes who I am. Don’t talk to me differently. Don’t Love me differently. I want to be treated the same way as before. I will always be the same person in your heart even if my body does change. This...
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Hurricanes are among the worst natural disasters that affect North and Central America. Being prepared if you are in a hurricane zone can make all the difference. Having a National Oceanic and Atmospheric Administration radio will help keep you updated in the event of a hurricane or other natural...
My name is Lisa and this is my message to anyone that has just been diagnosed with Endometriosis. As someone who has dealt with Endometriosis for a few years now, I feel like I can offer some words of advice for those who are just entering this new world. It...
Endometriosis is like an Iceberg. An Iceberg has over 90% of its mass below the surface. Meaning that you don’t see 90% of the iceberg. This is a good metaphor for Endometriosis as its effects are not always outward facing. You don’t necessarily know all the symptoms that someone...
A Recent Study has linked breastfeeding to a decrease in risk for Endometriosis. The study composed of 72,394 women who each had one or more pregnancies. 3,296 diagnosis of Endometriosis was among the group. Women who nursed for less than one month per pregnancy had a 32% higher chance of...
It’s incredible that one simple sentence can change one’s life forever, but I’ll get to that part later in my story. Born 1980. Nothing special about my birth, nothing out of the ordinary Lost my First Tooth 1986 Stung by a bee 1989 (At the time I remember it hurting a lot) Started...

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