My Battle with Endometriosis and Still Fighting

Hi I’m Jess and I was diagnosed this time last year.

I had been experiencing bad periods from the age of 15 and was put onto the pill at 16 to regulate my periods. I took the pill for 6 years until I had a suspected blood clot and had to stop the pill all together. 

From then I had been having severe periods both in pain and heaviness and there were some months where I was completely bed bound or screaming in pain when trying to go to the toilet. I also had some pain during sex which got worse over a few years, within this time I had also been trying for a baby but had no luck. 

In January 2018 I was rushed into hospital with a severe pain in the right side of my stomach. This turned out to be a severe water infection. Once this was treated I continued to have a constant pain in my right side which came and went over the next month. After this time I thought enough was enough and went to my GP. After a few scans and internal cameras we found a large cyst which was said to be a Dermoid cyst which is a cyst with different cells and folicals. I was told I needed to have this cyst removed as it would grow and slowly take over my ovaries. 

Fast forward a few months and after CT and MRI scans (the cyst had grown double in size within this time) I was booked in for my operation which was booked for August 2018. Nothing about endometriosis had been discussed as nothing has appeared on the scans… 

When I had awoken from my operation my consultant approached me with a sad look on his face and he explained to me that when they began to operate they found endometric tissue which had grown around my womb, ovaries, tubes and bowels… I was also told that I was at stage four for endometriosis. One of the worse stages. He also advised about having children as soon as possible as I have a two year window before I would be extremely difficult to conceive… 

I was distraught as a simple operation turned into my worst nightmare. The cysts had actually turned out to be chocolate cysts caused by my endometriosis. 

A year on and I’m at terms with my diagnoses. I was advised to have a coil inserted to help with pain and periods and it seems to be working okay. It still hits hard about my chances of conception but I am keeping positive and hoping that more information will be given about endometriosis so that other woman won’t be in my situation.

Discover

Sponsor

Latest

The Achievements of Endometriosis Patients

Another year has come to an end. A year with lots of events. For most people, the end of the year is...

Try to be in Our Shoes

Endometriosis is very much an invisible disease. Not too much is shown visibly and for that reason people don’t really understand what someone with...

What Happens When Medicine Isn’t Enough?

Recently, a great discussion happened in our Endometriosis Group: “Are there any natural remedies that help you cope with Endo?” Many women chimed in with insightful...

This is What Endo – Belly Is and No one Talks about it

Endo Belly is often the least talked about the symptom that Endometriosis has on the body. I can definitely understand as talking about it...

Symptoms of Endometriosis

Endometriosis is a diѕеаѕе of thе fеmаlе rерrоduсtivе system. It is often раinful аnd mаnу timеѕ is hаrd tо diаgnоѕе. In fасt, a definitive...